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Resources
Down Home Ranch is a community of opportunity for our Ranchers and their families. But we can't do it alone. There are times when we need answers and resources to help us find our way. This page will help to serve that need. We include links here to some of the most cutting-edge research in mental retardation, organizations that create new opportunities for people with disabilities and their families, and resources for parents and care givers. Please help us develop this list. If you know of an organization or have some information that should be included here, please contact us and let us know. We want to continue to provide our friends, our families and our Ranchers with every opportunity. Thank you. Note: External links open in a separate window.
Saving Those We Love: A Message of Utmost Urgency
The clock is ticking for our Ranchers with Down syndrome. Right now they are young adults, but all will develop Alzheimer's in their lives if they live past early middle age. Dr. Jon Pierce-Shimomura, Assistant Professor of Neurobiology at the University of Texas at Austin, is the father of a nine-year-old boy with Down syndrome. Jon is performing cutting-edge research on the functional implications of the extra 21st chromosome that causes Down syndrome. This research will lead to interventions to overcome the limitations of Down syndrome and block the development of Alzheimer's in people with (and without) the condition. Jon's work is fascinating and holds great hope for the future of those we love, but its continuance depends on Jon's ability to secure funding for it. Those of us who love people with Down syndrome owe it to them to help out in any way we canthrough direct contributions, securing help from others, and lobbying for more research dollars to go to Down syndrome, which is sadly underfunded relative to other disabilities. Please contact us today and join up with us to support the "Down Syndrome Research Project."
New Research and University Programs
Down Syndrome Education International: International Site USA Site UK & USA Conferences DSResearch, Inc. (Down Syndrome Research Online Advocacy Group) Down Syndrome On-Line Down Syndrome Research Foundation (Canada) Down Syndrome Research Foundation (United Kingdom) Down Syndrome Research Center - Stanford University School of Medicine Down Syndrome Research and Treatment Foundation Linda Crnic Institute, University of Colorado
Health & Wellness
The Down Syndrome Center of Houston - Texas Children's Hospital Down Syndrome: Health Issues News & Information for Parents & Professionals The Kennedy Center for Mental Retardation - University of Chicago, Department of Pediatrics Professional Journals and Articles
Wehmeyer, Michael L. and James R. Patton, editors (2002) Pro-Ed (Austin, TX), Social Constructions of Mental Retardation: Impersonal Histories and the Hope for Personal Futures. Mental Retardation in the 21st Century, pages 379-393.
Wolfensberger, W. (2010). How to Comport Ourselves in an Era of Shrinking Resources. Intellectual and Developmental Disabilities: A Journal of Policy, Practices, and Perspectives, Vol. 48, No. 2, pages 147-162. NPR, September 23, 2008: Fragile X - Drugs Hint At Potential Reversal Of Autism Books
Etmanski, Al. (2004) Planned Lifetime Advocacy Network, Vancouver, BC, Canada, A Good Life for You and Your Relative with a Disability.
Chicoine, Brian, MD and Dennis McGuire, Ph.D. (2010), Woodbine House (Bethesda, MD), The Guide to Good Health for Teens & Adults with Down Syndrome. McGuire, Dennis, Ph.D. and Brian Chicoine, MD (2006), Woodbine House (Bethesda, MD), Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges. Medlen, Joan E. Buthrie, R.D, L.D. (2002) , Woodbine House (Bethesda, MD), The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles.
Planning for the Future
These resources will help you start thinking about how to plan for the future of your child with special needs. Making Sure the Kids Are All Right , The Wall Street Journal, March 14, 2011, page R7 "For parents of children with special needs, financial planning can be especially complicatedand especially important." WrightsLaw: Special Needs: Planning for the Future: Information and Articles About Future Planning and Special Needs Trusts Support Groups & Advocacy These organizations offer publications, education, conferences, networking forums, and advocacy for individuals with intellectual and developmental disabilities and their parents, families, and extended circle of care-givers. American Association on Intellectual and Developmental Disabilities (AAMR/AAIDD) The Arc of the United States (formerly the Association for Retarded Citizens) DownSyndrome.com: Living and Learning with Down Syndrome National Association for Down Syndrome National Down Syndrome Congress National Down Syndrome Society International Mosaic Down Syndrome Association Online Support Groups and Social Networks
Leisure Time: Sports, Travel, and Other Recreation Breckenridge Outdoor Education Center (BOEC), Colorado Special Olympics Texas Rowing Center: Adaptive Rowing and Paddling Programs in Austin, Texas - Something for Everyone! Trips Inc. Special Adventures and Travel Outings, Eugene, Oregon Service Organizations Government Agencies: Federal, State, and Local
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