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A Worldwide Community: Resources, Links, Research, Information, Support Organizations, and Opportunities for Families and People with Special Needs, Compiled by Down Home Ranch, Elgin, Texas 78621

The Cutting Edge
Mark Your Calendars!

NDSC National Convention
July 16 - 18, 2010
Disney's Coronado
Springs Resort
Walt Disney World, FL

World Down Syndrome Day
March 20, 2011

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Resources

Down Home Ranch is a community of opportunity for our residents and their families. But we can't do it alone. There are times when we need answers and resources to help us find our way. This page will help to serve that need.

We plan to include links here to some of the most cutting-edge research in mental retardation, organizations that create new opportunities for people with disabilities and their families, and resources for parents and care givers. Please help us develop this list. If you know of an organization or have some information that should be included here, please contact us and let us know. We want to continue to provide our friends, our families and our residents with every opportunity. Thank you.

Note: External links open in a separate window.

Saving Those We Love: A Message of Utmost Urgency
Dr. Jon Pierce-Shimomura, Assistant Professor of Neurobiology at the University of Texas at Austin Dr. Jon Pierce-Shimomura, Assistant Professor of Neurobiology at the University of Texas at Austin

The clock is ticking for our Ranchers with Down syndrome. Right now they are young adults, but all will develop Alzheimer's in their lives if they live past early middle age. Dr. Jon Pierce-Shimomura, Assistant Professor of Neurobiology at the University of Texas at Austin, is the father of an eight-year-old boy with Down syndrome. Jon is performing cutting-edge research on the functional implications of the extra 21st chromosome that causes Down syndrome. This research will lead to interventions to overcome the limitations of Down syndrome and block the development of Alzheimer's in people with (and without) the condition. Jon's work is fascinating and holds great hope for the future of those we love, but its continuance depends on Jon's ability to secure funding for it. Those of us who love people with Down syndrome owe it to them to help out in any way we can—through direct contributions, securing help from others, and lobbying for more research dollars to go to Down syndrome, which is sadly underfunded relative to other disabilities. Please contact us today and join up with us to support the "Down Syndrome Research Project."

New Research and University Programs


Health & Wellness

Professional Journals and Articles
Wehmeyer, Michael L. and James R. Patton, editors (2002) Pro-Ed (Austin, TX), Social Constructions of Mental Retardation: Impersonal Histories and the Hope for Personal Futures. Mental Retardation in the 21st Century, pages 379-393.

Wolfensberger, W. (2010). How to Comport Ourselves in an Era of Shrinking Resources. Intellectual and Developmental Disabilities: A Journal of Policy, Practices, and Perspectives, Vol. 48, No. 2, pages 147-162.

NPR, September 23, 2008: Fragile X - Drugs Hint At Potential Reversal Of Autism

Books
Etmanski, Al. (2004) Planned Lifetime Advocacy Network, Vancouver, BC, Canada,  A Good Life for You and Your Relative with a Disability.

McGuire, Dennis, Ph.D. and Brian Chicoine, MD (2006), Woodbine House (Bethesda, MD), Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges.

Medlen, Joan E. Buthrie, R.D, L.D. (2002) , Woodbine House (Bethesda, MD), The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles.


Support Groups & Advocacy

Online Support Groups and Social Networks


Leisure Time: Sports, Travel, and Other Recreation


Service Organizations


Government Agencies: Federal, State, and Local

Texas Department of Aging and Disability Services (DADS)

      Future Subsections:
            How to Access Services
            HCS: What is it? The importance of getting on the HCS interest list


Other Link Categories Under Development

Schools, ARDS
Future Planning: Special Needs Trusts, Wills, and Other Estate Planning Tools

 


20250 FM 619 • Elgin, TX 78621
Email:  info@downhomeranch.org
Phone:  888.926.2253  •  Fax:  512.856.0256
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