Studies, Foundations, Advocacy and breakthroughs
Down Home Ranch is a community of opportunity for our Ranchers and their families. But we can’t do it alone. There are times when we need answers and resources to help us find our way. This page will help to serve that need.
There are innumerable IDD Resources regarding intellectual and developmental disabilities, many of which we will include on this website.
We include links here to some of the most cutting-edge research in IDD, organizations that create new opportunities for people with disabilities and their families and resources for parents and caregivers. Please help us develop this list. If you know of an organization or have some information that should be included here, please email us at [email protected] and let us know. We want to continue to provide our friends, our families and our Ranchers with every opportunity. Thank you.
Saving Those We Love: A Message of Utmost Urgency
Research and University Programs
Families Speaking Up: http://www.familiesspeakingup.com/
Jérôme Lejeune Foundation implements and supports research programs designed to develop treatments for Down syndrome (trisomy 21) and other intellectual disabilities of genetic origin.
The Foundation’s Mission: Harnessing the expertise and experience of each of the institutions that have gradually arisen and grown up around it, the Jérôme Lejeune Foundation today provides a platform of excellence supporting the key players in the optimised pursuance of its objectives: conducting research to eventually find a treatment for genetic intelligence disorders, caring for and supporting the patients afflicted by these illnesses, defending them by providing information, and awareness arousal, and, if necessary, by appealing to public opinion and the government. (For a more personal connection, read Judy’s blog post about the time she met Jérôme Lejeune.)
Health & Wellness
Handouts and Videos of Presentations from:
2015 Conference on Aging Matters: Growing Older with Down Syndrome
Hosted by NDSS and the Down Syndrome Community
Professional Journals and Articles
Wehmeyer, Michael L. and James R. Patton, editors (2002) Pro-Ed (Austin, TX), Social Constructions of Mental Retardation: Impersonal Histories and the Hope for Personal Futures. Mental Retardation in the 21st Century, pages 379-393.
Horton, Jerry, Ph.D., and Judy, Brain Injury Professional, vol. 12, issue 1, 2015, Reflections on the Lives of Persons with Cognitive Disabilities in an Era of Declining Resources and Rising Expectations
Wolfensberger, W. (2010). How to Comport Ourselves in an Era of Shrinking Resources. Intellectual and Developmental Disabilities: A Journal of Policy, Practices, and Perspectives, Vol. 48, No. 2, pages 147-162.
Etmanski, Al. (2004) Planned Lifetime Advocacy Network, Vancouver, BC, Canada, A Good Life for You and Your Relative with a Disability.
Chicoine, Brian, MD and Dennis McGuire, Ph.D. (2010), Woodbine House (Bethesda, MD), The Guide to Good Health for Teens & Adults with Down Syndrome.
Evans, Darryl, The Lives of Mentally Retarded People
McGuire, Dennis, Ph.D. and Brian Chicoine, MD (2006), Woodbine House (Bethesda, MD), Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges.
Medlen, Joan E. Buthrie, R.D, L.D. (2002) , Woodbine House (Bethesda, MD), The Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles
Check out Woodbine Press, which specializes in special education and special needs topics.
These resources will help you start thinking about how to plan for the future of your child with special needs.
“For parents of children with special needs, financial planning can be especially complicated—and especially important.”WrightsLaw: Special Needs: Planning for the Future: Information and Articles About Future Planning and Special Needs Trusts.
Post-Secondary Education Programs: Colleges and Vocational
Leisure Time: Sports, Travel, and Other Recreation
Texas Rowing Center: Adaptive Rowing and Paddling Programs in Austin, Texas
Trips Inc. Special Adventures and Travel Outings, Eugene, Oregon
Support groups and advocacy
The Arc of the United States (formerly the Association for Retarded Citizens)
National Down Syndrome Congress
National Down Syndrome Society